Samantha Myers

Hospital Stay

April 21, 2008 I had to go into the hospital at NYU Medical Center because I had to change medications to control seizures  I have been having. Even though I hate being in the hospital and hooked up to all this equipment, people there were really nice, and lots of friends visited me which madeit much more fun.
Check out my photo album where you can see all the people who came http://samanthamyers.typepad.com/photos/hospital_stay_2008/, plus the nurse Jennifer who brought me such a cool necklace on Saturday, right before I left.

Sam in the New York Times!

DISNEY CHANNEL; Another Minority

Published: June 22, 2003

To the Editor:

I was really glad to read your article about how the Disney Channel has developed successful shows with minority characters [''At the Disney Channel, It's a Diverse World After All'' by Marc Weingarten, May 25]. Disney has also been one of the best kid's channels at making great stories with believable characters who have different kinds of disabilities. Its made-for-TV movies, like ''Tru Confessions'' (about a teenager with a developmental disability and his twin sister) and ''Most Valuable Primate'' (about a deaf girl who befriends a chimp), are almost the only shows on television where you can see what its like for those of us who are part of another important minority.

SAMANTHA MYERS
Manhattan

The writer, who is 14, has the genetic disorder familial dysautonomia.

Fashion show

Tomorrow night I am in a fashion show for the FD fundraiser. I have a really cool outfit: a denim jacket and black dress with a skirt bottom with lots of colors. I get to keep it. My Mom picked it out. I tried it on. It fit perfectly right away.

Sam's letter to the NYT's editor

New York Times
June 22, 2003

Disney Channel
Another View

To the Editor:

I was really glad to read your article about how the Disney Channel has developed successful shows with minority characters [''At the Disney Channel, It's a Diverse World After All'' by Marc Weingarten, May 25]. Disney has also been one of the best kid's channels at making great stories with believable characters who have different kinds of disabilities. Its made-for-TV movies, like ''Tru Confessions'' (about a teenager with a developmental disability and his twin sister) and ''Most Valuable Primate'' (about a deaf girl who befriends a chimp), are almost the only shows on television where you can see what its like for those of us who are part of another important minority.

SAMANTHA MYERS, Manhattan

The writer, who is 14, has the genetic disorder familial dysautonomia.

Natan interviews Samantha

3/13/03. Samantha Myers is a fourteen year old girl. She lives with her parents and her dog, Smokey. She has a rare Jewish genetic disorder called Familial Disautonomia. It affects the motor system and she has trouble swallowing. She has a button in her stomach; she gets fluids in this manner. A syringe is put into the top of the button and the plunger pushes the fluid into her stomach. She has gone on national television and explained what F.D. is. She also raises money for the F.D. foundation, to find a cure. I am Samantha's friend and I interviewed her when she was 14 and I was 13 years old, in 2003.

Make a Wish video

One of the highlights of my life was Make a Wish. Here is the movie they made of my life with FD. Come back to my blog to see my segment on Nick News.