Read all about Sam at Limmud last weekend in NYC. She's a star!
"Samantha Myers is a high schooler in NYC. She has advocated for kids with FD since she appeared on Nick News to talk about her disease at age 10. She has been on CNN, spoken publicly for the Make A Wish Foundation, and spoke at the Girl Power conference for the Lower East Side Girls' Club. She has raised over $15,000 for research and care for those with FD."
Sam is the star of the work-in-progress "Sam's Club," "an inter-generational video-diary about life, love and FD starring Samantha Myers as her beautiful self, which was presented on Sunday, and programmed by Judith Helfand. "Seventeen-year-old "Sam" was born with a great sense of humor, a bad case of the Jewish genetic disease Familial Dysautonomia (FD) and radical notions about using T.V. for social change. She and her mom will present a range of material from a NICK NEWS Special with Sam as "Star FD Advocate" to her current passion for making and starring in original "twins" movies."
She also participated in a panel about who is included and who is not: "From the Bar Mitzvah of a boy with Down Syndrome to a 40+ Chassidic man who hides his cystic-fibrosis from his community; nose jobs and “perfect thighs” to “Bubby never mentioned I was half black” to 17-year-old “Sam” born with a bad case of the Jewish genetic disease FD, a great sense of humor & radical notions about social-change t.v. Buckle UP!"
That's not all! Sam was also part of a session entitled "Today I am a Bar/Bat Mitzvah With or Without a Ramp!" "For the last 20 years, rare and creative synaogogues, families and rabbis have been creating B'nei Mitzvah ceremonies for young adults with special needs. Every case requires determination and flexibility. Using original Divrei Torah, one read by a Bat Mitzvah girl herself (now 17), we will explore the meaning, rewards and ripple effect of life-change/life-cycle ceremonies."
We are soooo proud of Sam! Congratulations to our very own star.